In April 1985, Beverley was getting ready to fly to Brazil to speak at a WHO International Conference. Unfortunately she responded badly to her yellow fever vaccinations. Despite feeling dreadful, she felt she couldn’t let the organisers down and went on her trip. Not long after she returned she was hit by the flu, which …
Category archives: Uncategorised
Victoria beat the Nazgul in her
After 4 years of the push-and-crash cycle and seeing more than a dozen specialists, Victoria received the diagnosis of CFS. She was debilitated and mostly bed bound by that time. Things started to change when she searched out people who had recovered and learned from what they did. She began to make small percentage points …
Stand’s ascent from the ocean floor
Originally from Seattle, USA, Stand now lives with her (cool, sweet, good) husband Grim and cat Furi in Bergen, Norway. She used to love hiking in the mountains. She just started a PhD when she realised that the flu she caught wasn’t going away, instead the symptoms were getting worse and worse as a result …
Tech-savvy spoonie wanted!
I’m looking for a partner in crime. The mantra of focusing on the things you get energy from is important for everyone and even more important when your energy is such a scarce resource. I am really enjoying collecting the stories and becoming an active part of the ME/CFS community. However, the technical web bits …
Simon’s car is back on the road
Born in Kenya, Simon spent most of his childhood in Kent, England. He developed a successful career as mental health practitioner, but started having fatigue symptoms after he took on a stressful management job. In 1997 he was diagnosed with Chronic Fatigue Syndrome and Fibromyalgia. After eight difficult years, his road to recovery really began …
Raelan making it through bootcamp
Raelan started to have symptoms in 2008 and was diagnosed with Chronic Fatigue Syndrome about a year later. Since then she has taken control in her own hands and developed her own recovery programme. Now, fully recovered, she is determined to supports others in their journey. From her home in Edmonton, Canada, she has set …
Nyki surviving the black fog
Nyki started having niggling symptoms in the early nineties and eventually in 2015 the doctor suggested it was fibromialga. However, learning more about the illnesses over the years she recognises that she was actually showed more the classic CFS/ME symptoms in addition to fibromyalgia symptoms. Nyki has made a great recovery and is now living …
Titia is airlifted to a remote island
“My daily routine helps me to not overdo it and not fall into depression
Adele living with her mother in law
Adele started to have symptoms in December 2012, not being able to do the runs she usually enjoys. She investigated more about it and discovered she met all the criteria of Chronic Fatigue Syndrome, based on that, six months later she self-diagnosed. Now she is able to live at 90% of her usual self when …